The recommendation provides guidelines for the establishment, management, governance, operation, access, use and discontinuation of HBGRDs. It recognises that one of the fundamental objectives of an HBGRD is to foster scientific research. Overall, it...
This is the final report of the BIONET project, an inter-disciplinary China-Europe
collaboration on the ethical governance of biological and biomedical research consisting of 20 partners from Europe and China.
Governing Biobanks: An Introduction
in
PRINCIPLES and PRACTICE in BIOBANK GOVERNANCE
Edited by Jane Kaye (University of Oxford) and Mark Stranger (University of Tasmania).
ASHGATE www.ashgate.com
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New guidance released by the UK General Medical Council (UK) says that doctors may in some circumstances share confidential genetic information about patients with their relatives against the wishes of the patient.
The Human Tissue Authority (UK) has commissioned some research to test the veracity of this claim and assess the effect of the legislation on researchers working with human tissue.
The results were published in September 2009 in this report.
The National Cancer Research Institute’s Confederation of Cancer Biobanks is a consortium of organisations based in the UK that are involved in the development, management and use of biobank resources for cancer research.
In January 20...
The UK Human Genetics Commission (HGC) has recently launched a consultation on a Common Framework of Principles for direct-to-consumer genetic testing services. The consultation period is running until 6 December 2009. Responses are welcomed from any...
This position paper’s focus—advertising of genetic
testing services directly to the consumer/patient—has been thrust into the headlines by action taken by state health departments in California and New York against certain private testing comp...
