| | [Guidelines for human biobanks, genetic research databases and associated data (WA)]
[Full Summary] | | The Guidelines are intended for biobanks, human and population genetic research databases within the jurisdiction of the Western Australian Department of Health but may also be useful for other facilities and research ethics committees.
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| [Genetic Risk Carriers and Lifestyle Risk Takers. Which Risks Deserve our Legal Protection in Insurance]
[Full Summary] | | Over the past years, one of the most contentious topics in policy debates on genetics has been the use of genetic testing in insurance. In the rush to confront concerns about potential abuses of genetic information, most countries throughout Europe a... |
| [A Common Framework of Principles for direct-to-consumer genetic testing services]
[Full Summary] | | Human Genetics Commission (UK):
The Principles determine the standards that test providers should work within when providing genetic testing services directly to the public. They apply to all situations where it is possible for a consu... |
| [Sunny Samaritans and Egomaniacs: Price-Fixing in the Gamete Market]
[Full Summary] | | The modern American marketplace provides many income opportunities, not only to those with golden eggs, but to those with golden sperm as well. The U.S. market for gametes is robust, international, and growing, thanks to advances in fertility treatme... |
| [Understanding the genetically at risk: clinical, psychological and social approaches]
[Full Summary] | | Understanding the genetically at risk: clinical, psychological and social approaches
Lyn Turney
The scientific discovery of a range of genetic mutations has meant that people with a strong family history of cancer can f... |
| [Anticipating emerging genomics technologies: The role of patents and publication for research and policy strategies]
[Full Summary] | | Anticipating emerging genomics technologies: The role of patents and publication for research and policy strategies
Rens L.J. Vandeberg & Wouter P.C. Boon
There is an increasing interest in scanning and assessing the sc... |
| [Human Stem Cell Research and Regenerative Medicine: A European Perspective on Scientific, Ethical and Legal Issues]
[Full Summary] | | The possibility of repairing or replacing tissue or organ function lost due to age, disease, damage or congenital defects, using human stem cells (hSCs), raises deep ethical issues, often evoking strong emotions. Clearly, as stated in
2002, sc... |
| [Final Report of the National Academies Human Embryonic Stem Cell Research Advisory Committee and 2010 Amendments to the National Academies Guidelines for Human Embryonic Stem Cell Research]
[Full Summary] | | In 2005, the National Academies (US) released the book, Guidelines for Human Embryonic Stem Cell Research, which offered a common set of ethical standards for a field that, due to the absence of comprehensive federal funding, was lacking national sta... |
| [Intrafamilial disclosure of genetic risk information for heriditary breast cancer: a communications framework]
[Full Summary] | | There is currently little guidance for health professionals regarding intrafamilial communication of genetic risk for hereditary breast cancer caused by a mutation in the BRCA 1 or 2 genes. A number of national laws address risk communication, but vi... |
| [The Capability Report: Model Approaches for Capacity Building for the Translation of Genetic Knowledge into Practice and Prevention]
[Full Summary] | | CAPABILITY is a 3-year model project developed jointly by units 3 (Clinical Genetics, Community Genetics and Public Health) and 6 (Education) of the Network of Excellence: Genetic Testing in Europe Network for test development, harmonization, validat... |
