OECD Guidelines on Human Biobanks and Genetic Research Databanks

The recommendation provides guidelines for the establishment, management, governance, operation, access, use and discontinuation of HBGRDs. It recognises that one of the fundamental objectives of an HBGRD is to foster scientific research. Overall, it seeks to facilitate wide access to data and materials for biomedical advances while ensuring that research is conducted in a manner respectful of participants, and that upholds human dignity, fundamental freedoms and human rights.